Advocacy and Support Groups

Find a GEP-NET support organization

A support network of family, friends, and caregivers may help you through your treatment journey. In addition, support communities can provide you with information you may find helpful. Below is a list of support organizations that you and your caregivers may find helpful.

The Carcinoid Cancer Foundation (CCF)
333 Mamaroneck Avenue #492
White Plains, NY 10605

The Healing NET Foundation
200 Hill Avenue, Suite 4
Nashville, TN 37210

Los Angeles Carcinoid Neuroendocrine Tumor Society (LACNETS)

Northern California CarciNET Community (NorCal CarciNET)
946 North Ripon Road
Ripon, CA 95366

The Neuroendocrine Cancer Awareness Network (NCAN)
3074 Brookchase Boulevard
Fort Mill, SC 29707


LUTATHERA® (lutetium Lu 177 dotatate) is a prescription medicine used to treat adults with a type of cancer known as gastroenteropancreatic neuroendocrine tumors (GEP-NETs) that are positive for the hormone receptor somatostatin, including GEP-NETs in the foregut, midgut, and hindgut.

Patient Discussion Guide
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