Advocacy and Support Groups

Find a GEP-NET support organization

A support network of family, friends, and caregivers may help you through your treatment journey. In addition, support communities can provide you with information you may find helpful. Below is a list of support organizations that you and your caregivers may find helpful.

The Carcinoid Cancer Foundation (CCF)
333 Mamaroneck Avenue #492
White Plains, NY 10605
1-888-722-3132
www.carcinoid.org

The Healing NET Foundation
200 Hill Avenue, Suite 4
Nashville, TN 37210
615-369-6463
www.thehealingnet.org

Los Angeles Carcinoid Neuroendocrine Tumor Society (LACNETS)
info@lacnets.org
www.lacnets.org

Northern California CarciNET Community (NorCal CarciNET)
946 North Ripon Road
Ripon, CA 95366
www.norcalcarcinet.org

The Neuroendocrine Cancer Awareness Network (NCAN)
3074 Brookchase Boulevard
Fort Mill, SC 29707
1-866-850-9555
help@netcancerawareness.org
www.netcancerawareness.org

What is LUTATHERA?

LUTATHERA® (lutetium Lu 177 dotatate) is a prescription medicine used to treat adults with a type of cancer known as gastroenteropancreatic neuroendocrine tumors (GEP-NETs) that are positive for the hormone receptor somatostatin, including GEP-NETs in the foregut, midgut, and hindgut.

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